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Press Releases 2008

                                                                                            For Immediate Release

                                                                                            May 12, 2008

KLEES DECLARES FIBROMYALGIA AND

CHRONIC FATIGUE SYNDROME AWARNESS DAY

 

(Queen’s Park) Newmarket-Aurora MPP Frank Klees declared May 12 as Fibromyalgia and Chronic Fatigue Syndrome Awareness Day.  The following is his statement made today in the Legislature:


“It’s my privilege to declare May 12 Fibromyalgia and Chronic Fatigue Syndrome Awareness Day. May 12 was chosen to memorialize the birthday of Florence Nightingale, the English nurse who inspired the founding of the International Red Cross. Nightingale herself contracted a paralyzing illness in her mid-thirties and spent the last 50 years of her life bedridden. Despite her illness, she founded the first ever school of nursing. It is fitting that this determined woman now shines as a ray of inspiration and hope to victims of Fibromyalgia and Chronic Fatigue Stress Syndrome.

These illnesses are characterized by cognitive problems, chronic muscle and joint pain, poor stamina and many other symptoms. They have been afflicting people in alarming numbers. Today, over a million Canadians have been diagnosed with Fibromyalgia and CFS. Many victims are left in such a weak state that they cannot even feed or bathe themselves.


To find a cure for this illness, the public must work in tandem with the government, and the medical establishment especially, to remove remaining misunderstandings about Fibromyalgia and CFS. Today, a number of victims of Fibromyalgia join us in this chamber to send a clear public message that it is time to move forward to find a cure. That time is now.

I extend a special welcome to Giselle Imbrogno and the York Region Fibromyalgia and CFS Wellness Support Group and Dr. Alison Bested, who will be available, in the media studio at 2 p.m., to provide information on this important issue.”

-30-             


Dear Mr. Klees,

"On behalf of all of the patients in Ontario who have Fibromyalgia and Chronic Fatigue Syndrome (6% and 3% of people), I want to thank you for the opportunity to inform the legislature of these patients’ needs. They need access to health care treatment: both in patient and out patient treatment in Ontario and the ongoing CCAC and other supportive services that help them to live independent lives. Doctors in training and already in practice and all health professionals need to be trained in this area.

Today, you’ve given me a glimmer of hope to carry on and I thank you."

Sincerely,

Alison C. Bested MD FRCPC

"Thank you so much for all that you did to make today such a big success.”

Kimberley Dowds

The M.E. Association of Ontario